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Towards a Learning Health System for Symptom Management in Hospice Care
Marieke Massa, Marijke A. Dermois, Jennifer Caffarel, Christine M. Cramer-Van Der Welle, Dianne K.E. Boxman, Everlien de Graaf, Saskia S.C.M. Teunissen, Jurrian van der Werf
66 - 67
10.3233/SHTI240347
Research Article
Studies in Health Technology and Informatics
Volume 316: Digital Health and Informatics Innovations for Sustainable Health Care Systems
Abstract

The reuse of real-world symptom monitoring data is essential in improving the quality of hospice care. A framework for achieving this is a Learning Health System, in which the development of a well-defined dataset is essential. This paper discusses the challenges in the design of a comprehensive dataset, focusing on variations in two electronic health record systems and divergent care processes.

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