The Importance of Being FAIR and FAST – The Clinical Epidemiology and Study Platform of the German Network University Medicine (NUKLEUS)
Dagmar Krefting, Gabi Anton, Irina Chaplinskaya-Sobol, Sabine Hanss, Wolfgang Hoffmann, Sina M. Hopff, Monika Kraus, Roberto Lorbeer, Bettina Lorenz-Depiereux, Thomas Illig, Christian Schäfer, Jens Schaller, Dana Stahl, Heike Valentin, Peter Heuschmann, Janne Vehreschild
The COVID-19 pandemic has urged the need to set up, conduct and analyze high-quality epidemiological studies within a very short time-scale to provide timely evidence on influential factors on the pandemic, e.g. COVID-19 severity and disease course. The comprehensive research infrastructure developed to run the German National Pandemic Cohort Network within the Network University Medicine is now maintained within a generic clinical epidemiology and study platform NUKLEUS. It is operated and subsequently extended to allow efficient joint planning, execution and evaluation of clinical and clinical-epidemiological studies. We aim to provide high-quality biomedical data and biospecimens and make its results widely available to the scientific community by implementing findability, accessibility, interoperability and reusability – i.e. following the FAIR guiding principles. Thus, NUKLEUS might serve as role model for FAIR and fast implementation of clinical epidemiological studies within the setting of University Medical Centers and beyond.
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