Electronic Patient Reported Outcomes for Miscarriage Research in Tommy’s Net
Omar Khan, Shramika Gour, Sarah N. Lim Choi Keung, Natalie Morris, Rebecca Shields, Siobhan Quenby, Danai B. Dimakou, Oonagh Pickering, Jennifer Tamblyn, Adam Devall, Arri Coomarasamy, Danielle K. Thornton, Alison Perry, Theodoros N. Arvanitis
The Tommy’s National Centre for Miscarriage Research aims to support the diagnosis and treatment for couples suffering from recurrent miscarriage. Tommy’s Net is an electronic data gathering tool, collecting miscarriage data and links with hospital Clinical Information System databases. The gathering of patient reported data is an important aspect, especially as data relating to pregnancy and miscarriage events are often left unreported.
Both traditional paper-based and electronic patient reported outcome (ePRO) solutions have been explored to improve response rates, minimize data redundancy and reduce burden on staff. Popular ePRO survey solutions have been compared, including REDCap, SurveyMonkey, Qualtrics and LimeSurvey.
LimeSurvey was selected as the most appropriate solution as it provided self-hosting capability, SMS integration and ease of use.
We have implemented a LimeSurvey based ePRO system for collection of baseline and follow-up data for participants on the Tommy’s study.
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