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Sharing observational and interventional health data within a common data space enables university hospitals to leverage such data for biomedical discovery and moving towards a learning health system.
Objective:
To describe the AP-HP Health Data Space (AHDS) and the IT services supporting piloting, research, innovation and patient care.
Methods:
Built on three pillars – governance and ethics, technology and valorization – the AHDS and its major component, the Clinical Data Warehouse (CDW) have been developed since 2015.
Results:
The AP-HP CDW has been made available at scale to AP-HP both healthcare professionals and public or private partners in January 2017. Supported by an institutional secured and high-performance cloud and an ecosystem of tools, mostly open source, the AHDS integrates a large amount of massive healthcare data collected during care and research activities. As of December 2021, the AHDS operates the electronic data capture for almost +840 clinical trials sponsored by AP-HP, the CDW is enabling the processing of health data from more than 11 million patients and generated +200 secondary data marts from IRB authorized research projects. During the Covid-19 pandemic, AHDS has had to evolve quickly to support administrative professionals and caregivers heavily involved in the reorganization of both patient care and biomedical research.
Conclusion:
The AP-HP Data Space is a key facilitator for data-driven evidence generation and making the health system more efficient and personalized.
