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Clinical Guideline-Driven Personalized Self-Management Diary for Paediatric Cancer Survivors
Samuel Alan Stewart, Samina Abidi, Louise Parker, Mark Bernstein, Syed Sibte Raza Abidi
18 - 22
10.3233/978-1-61499-432-9-18
Studies in Health Technology and Informatics
Volume 205: e-Health – For Continuity of Care
Abstract

Shared Decision Making (SDM) is the process of patients and clinicians working together to manage medical treatment using the existing knowledge base. This paper presents the YouCan framework, a system for summarizing and presenting the necessary knowledge for SDM related to pediatric cancer follow-up management. Knowledge modelling of a Clinical Practice Guideline produced a customized ontology, which was then passed through a pellet reasoned to produce a customized patient diary that summarizes a patient's oncological history as well as the potential issues they may face in follow-up.

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