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A Data Protection Framework for Transeuropean genetic research projects
Brecht Claerhout, Nikolaus Forgó, Tina Krügel, Marian Arning, Georges De Moor
67 - 72
10.3233/978-1-58603-922-6-67
Studies in Health Technology and Informatics
Volume 141: Collaborative Patient Centred eHealth
Abstract

The paper proposes a data protection framework for trans-European medical research projects, which is based on a technical security infrastructure as well as on organizational measures and contractual obligations. It mainly relies on pseudonymization, an internal Data Protection Authority and on a Trusted Third Party. The outcome is an environment that combines both good research conditions and an extensive protection of patients' privacy.

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