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Data and Process Harmonisation of Multi-National, Multi-Site Research Data
Jonathan Turner, Sinéad Impey, Frances Gibbons, Anthony Bolger, Gaye Stephens, Lucy Hederman, Ramisa Hamed, Ciara O’Meara, Ferran de la Varga, John Kommala, Matthew Nicholson, Daniel Farrell, Miriam Galvin, Mark Heverin, Éanna Mac Domhnaill, Robert McFarlane, Dara Meldrum, Deirdre Murray, Orla Hardiman
1411 - 1412
10.3233/SHTI240675
Research Article
Studies in Health Technology and Informatics
Volume 316: Digital Health and Informatics Innovations for Sustainable Health Care Systems
Abstract

To achieve a single fully harmonised research data set suitable for analysis from data collected at multiple sites requires not only semantic integration of collection concepts and convergence onto single collection units, but harmonisation of data collection processes. We describe our experience of identifying harmonisation challenges in the Precision ALS project, with particular focus on process alignment challenges in a multi-site multi-national research data collection project.

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