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Development of a Maturity Model for Medical Patient Registries – A Community Approach
Authors
Anna Niemeyer, Anne C. Regierer, Tobias Hartz, Christof Veit, Neeltje van den Berg, Irina Beckedorf, Irene Schlünder, Emily Neubauer, Wolfgang Hoffmann, Sebastian C. Semler, Rainer Röhrig, TMF WG Medical Registries
Development of a generic model to visualize the potential for use and further development of registries to assess the suitability of the registry for a specific purpose.
Methods:
Multi-stage community approach.
Results:
The maturity model has 9 categories with 105 items. The purpose of the registry is mapped via potential usage dimensions.
Conclusion:
Important for acceptance is the appropriateness of the requirements in relation to the purposes.
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