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An Online Community for Patient with Psoriasis with Built-in Self-Reported Questionnaires
Giuliana Colussi, Delfina Inda, Lucila Bruchanski, Fernando Binder, Barbara Agustina Hernandez, Maria Luz Bollea, María Julia Cura, María Laura Galimberti, Luis Mazzuoccolo, Janine Sommer, Fernando Plazzotta, Daniel Luna
This study presents an online psoriasis community developed with dermatologists in a PHR. We describe the interaction of users with this platform and the relationship between the use of self-report questionnaires, their results and users’ subsequent contact with the healthcare system. Out of 2175 users that interacted with the platform, 477 visited the forums. 60% of those who completed questionnaires presented at least one abnormal result that prompted a recommendation for an outpatient visit. Although our data suggest a trend, we failed to find a statistically significant association between questionnaire severity and visits scheduling. To our knowledge, this is the first study that analyses the relationship between patient self-reported disease severity and the subsequent contact with the healthcare system.