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Rapid-Cycle Implementation of a Multi-Organization Registry for Heart Failure with Preserved Ejection Fraction Using Health Information Exchange Standards
Ambarish Pandey, James MacNamara, Satyam Sarma, Ferdinand Velasco, Vaishnavi Kannan, John Willard, Cheryl Skinner, Tony Keller, Mujeeb Basit, Benjamin Levine, Duwayne Willett
Constructing multi-site specialty registries typically proves time-consuming. Electronic health record (EHR) data collected during clinical care affords a pragmatic approach to accelerating registry implementation. Heart failure with preserved ejection fraction (HFpEF) is an increasingly common and morbid condition. Building a multi-site registry for HFpEF proved feasible using EHR data coded in standard terminologies (SNOMED CT, LOINC) and shared via Health Information Exchanges.
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